Links To Down Syndrome Resources

  • National, State and Local Organizations

National Down Syndrome Society
www.ndss.org/

National Down Syndrome Congress
www.ndsccenter.org

The National Academy for Child Development
www.nacd.org

National Association for Down Syndrome
www.nads.org/

Down Syndrome Information Network
www.down-syndrome.info/

March of Dimes - Down Syndrome
www.marchofdimes.com/

The Arc of the United States, a national organization on mental retardation
thearc.org/

Nation Information Center for Children and Youth with Disabilities
www.nichcy.org

  • Education, Advocacy, and Estate Planning

Special Education Law & Advocacy
www.wrightslaw.com

Reed Martin
www.reedmartin.com

Met Life’s Planning for Children with Special Needs
www.metlife.com/desk/

  • Health and Medical Issues

Targeted Nutritional Intervention and Genetics by Dr. Lawrence Leichtman
www.lleichtman.org/

Down Syndrome Health Isses by Dr. Len Leshin
www.ds-health.com

HealthBoards.com
www.healthboards.com/down-syndrome/

Health Care Guidlines for Individuals with Down Syndrome
www.denison.edu/collaborations/dsq/health96.html

Growth Chart for Children with Down Syndrome
www.growthcharts.com

Biochemistry and other info about Down Syndrome
www.einstein-syndrome.com/links_resources.htm

Down Syndrome & Autistic-Spectrum Disorder
www.disabilitysolutions.org/pdf/3-5-6.pdf

http://www.disabilitysolutions.org/ds-autism_center.htm

Down’s Syndrome Vision Research Unit
www.cardiff.ac.uk/optom/DownsSyndromeGroup/Home.html

Kennedy Krieger Institute Down Syndrome Guide Articles
http://www.kennedykrieger.org/kki_misc.jsp?pid=1987

Original article on JAMA web site about Sleep Apnea http://archotol.ama-assn.org/cgi/content/short/132/4/432

April 17, 2006 Press Release on Sleep Apnea http://www.eurekalert.org/pub_releases/2006-04/jaaj-asp041306.php

Obstructive Sleep Apnea and DS
http://www.ds-health.com/apnea.htm

From the Riverbend web site - Article on Sleep Apnea http://www.altonweb.com/cs/downsyndrome/index.htm?page=ferri.html

A interesting point of view about misdiagnosis of Alzheimers in adults with DS may actually be the effects of chronic sleep apnea. http://www.neuro.jhmi.edu/BrainWaves/2004_Spring/DS.htm

American Family Physician - Excellent Article on OSA / Sleep Apnea http://www.aafp.org/afp/20040301/1147.html

  • Education and Inclusion

No Child left Behind
www.ed.gov/nclb/landing.jhtml

Special Olympics
www.specialolympics.org

Center For Special Education Research
http://www.csef-air.org/

US Department of Education Office of Special Education Programs
www.ed.gov/about/offices/list/osers/osep/index.html

  • Research

Elwyn Inc. - Research On Down Syndrome
www.elwyn.org/pro_articles_downsyndrome.html

Trisomy 21 Research Foundation, Inc.
www.tri21.org

Center For Motor Behavior & Pediatric Disabilities
www.umich.edu/~cmbds/

  • Support

Down Syndrome for New Parents
www.downsyn.com/

Riverbend Down Syndrome Parent Support Group
www.altonweb.com/cs/downsyndrome/index.htm

Diagnosis Down Syndrome
leeworks.net/DDS/

African-Americans and Down Syndrome
groups.msn.com/minorfamily